Staying Alive and Well

We have been commissioned by NHS England to support the National Learning Disability and Autism Programme to reduce inequalities and premature mortality among learning disabled (LD) and autistic people. This involves analysing the data of the Learning Disability Mortality Review programme (LeDeR), which reviews deaths of people with learning disabilities, looks at their life and the health and social care services they received.

We use our skills in co-research and co-production to lead the Co-Production Partnership, working with the Foundation of People with Learning Disabilities, the Estia Centre and Pathways Associates.

At the heart of the partnership is an expert core group of around 6 people with LDs whose role includes identifying areas that need further attention, harnessing the views of other people with LDs on pertinent issues, contributing to the identification of recommendations, and communicating the LeDeR findings to a wider audience including people with LDs.