Simons Searchlight

To create scientific breakthroughs for rare genetic neurodevelopmental disorders, families and scientists must work together. Simons Searchlight is building an ever growing natural history database, biorepository, and resource network. Families like yours are key to meaningful progress.

We unite families and scientists to drive scientific breakthroughs. By collecting high-quality, standardized natural history data and fostering strong partnerships with researchers, industry, and your family, we shine a light on these disorders.

Our team includes scientists, doctors, data analysts, genetic counselors, research coordinators, and communication specialists. We're committed to making research participation more accessible.

Together, we understand your genetic conditions and challenges, striving to enhance your medical care. Sharing our knowledge and supporting scientists, we aim to improve care today and develop future treatments.