Unique Rare
@auniquerare
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To 40
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About Unique Rare
Sharing what's it like having a rare hidden disability called Lower Limb Dystonia. I also have Complicated Hereditary Spastic Paraplegia and Charcot-Marie-Tooth disease. I have complicated HSP since also have Connective Tissue Disease, Raynaud's, CRPS Type 2, and Lower Limb Dystonia.
I’m raising funds for hand controls since my feet don’t feel the pedals. My right hand/arm tremors are worse than my left hand when holding things. My instructor said I’m looking at reduced steering with Tri-pin and push/pull for gas.
#dystonia #crps #hereditaryspasticparaplegia
#motorneuronedisease
#hsp #rarediseases
https://helphopelive.org/campaign/19994/
Venmo - USurpriseMe
CashApp - USurpriseMe
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Latest Video
My feet swell up wearing socks and shoes.
Uploaded
69
views
3
Likes
0
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